AA&MDSIF Patient and Family Conference
July 27-30, 2008, Arlington, VA
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Patient Advocacy Day at the U.S. Capitol

The AA&MDSIF helped conference attendees make a lobbying trip to the U.S. Congress More than 100 patients and their family members line up to visit the offices of their Senators and Representatives Mark Vieth of Cavarocchi Ruscio Dennis Associates gives everyone instructions and materials in preparation for talking to their representatives

As they visited each representative's or senator's office, Foundation staff, board members, patients, and family members asked for support for the Bone Marrow Failure Disease Research and Treatment Act and for increased funding for bone marrow failure disease research Senator Thad Cochran of Mississippi. Leftmost: John Huber The office of Massachusetts Representative Jim McGovern

Honoring Representative McGovern, co-sponsor of the Bone Marrow Disease Resolution. Rightmost: John Thierault Ruth Cuadra presents a plaque to California Representative Mary Bono Mack for her support of the Bone Marrow Disease Resolution The AA&MDSIF thanks Mary Bono Mack "in recognition of your commitment to patients and families coping with bone marrow failure diseases, and your steadfast leadership in fighting for increased funding for research, treatments and cures."

Representative Mary Bono Mack with patients Brigitte Griffis and Ruth Cuadra Arkansas Senator Blanche Lincoln with Vivian Blackshear and Linda Frost Connecticut Representative Christopher Murphy's intern Melissa Warnke and patient Kathleen Friedman

 
Georgia Representative John Lewis with patient Stephen King, patient Linda Payne, and Jean King North Carolina Representative Bob Etheridge. Leftmost: Jane Marsh  

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Photos by David Anderson Photography and Neil Cuadra