AA&MDSIF Patient and Family Conference
July 10-12, 2009, Indianapolis, IN
July 10-12, 2009, Indianapolis, IN
Speakers
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Dr. Carlos DeCastro: • PNH 101 • Current Thinking on PNH, Diagnosis, and Treatment • Long-Term and Post-Treatment PNH Issues |
Dr. Gail Roboz: • MDS 101 • Current Thinking on MDS, Diagnosis, and Treatment • Long-Term and Post-Treatment MDS Issues |
Dr. David Margolis: • Aplastic Anemia 101 • Q&A session for Parents of Pediatric Patients • Children's Workshop |
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Ann Steiner: • The Rollercoaster of Chronic Illness: How to Add Joy to the Ride • Communication Tips for Better Living with Bone Marrow Failure Diseases |
Dr. Neal Young: • Current Thinking on Aplastic Anemia, Diagnosis, and Treatment |
Dr. David Steensma: • Current Thinking on MDS, Diagnosis, and Treatment • Fundamentals of Hematology and Bone Marrow Failure Diseases • Iron Overload: Prevention, Diagnosis, and Treatment |
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Dr. Jaroslaw Maciejewski: • Current Thinking on PNH, Diagnosis, and Treatment • A Deeper Look at PNH: Understanding the Complement Cascade and Hemolysis |
Dr. Joachim Deeg: • Peripheral Blood Stem Cell and Bone Marrow Transplantation: Understanding Your Options |
Kevin Lucia: • Aplastic Anemia and Your Health Insurance • MDS and Your Health Insurance • PNH and Your Health Insurance |
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Penni Potter-Perez: • Aplastic Anemia and Your Health Insurance • MDS and Your Health Insurance • PNH and Your Health Insurance |
Barbara Weinstein: • Clinical Trials: An Option to Consider |
Olga Nuņez: • Clinical Trials: An Option to Consider |
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Susan Carson: • Blood Transfusions vs. Growth Factors: A Closer Look at Risks, Benefits and Options |
The Online Learning Lab: PCs with Internet access, assistance and lessons. |
Neil Cuadra: • Marrowforums |
Photos by Neil Cuadra and the Aplastic Anemia & MDS International Foundation