Kirby Stone's Personal Profile
The Roller Coaster Continues
In early 2011 blood counts were again dropping rapidly. I had been on Thalidomide for 18 months and we decided to restart Revlimid. It was used in conjunction with the low dose Dacogen and Promacta. Again we had amazing results, the blood counts all increased very rapidly over a 3-month period. A BMB had fairly good results with the blasts at 8%.
After peaking in April-May, 2011 the blood counts again started a rapid drop. We are trying to find a new combination of drugs.
I’ve had a long success against MDS, over 7 years as an RAEB-2 patient who transformed to AML. At diagnosis the numbers suggested I might live only a few months. My success has enabled me to spend more time with my wife, children, grandchildre, and our many friends.
Over the years we have met many other MDS patients and their caregivers by e-mail, phone calls, and personal visits. As fellow patients we can help one another to face this difficult disease.
I always encourage them to:
Next: Kirby's Legacy
Kirby Stone with his grandchildren