Medical Resources
This list covers some of the best-known organizations and websites offering medical information and support services for patients, families, and caregivers. No single list can cover all such resources. In addition to finding resources on the Internet, you can contact your local treatment center or find information at a public or university library.
If you have specific suggestions for additions, please contact us.
If there is something in particular you are looking for, we suggest that you post in the forums so other Marrowforums members can assist you.
Categories:
Canadian Treatment Centers by Province (see also our Treatment Center Map)
U.S. Treatment Centers by State (see also our Treatment Center Map)
Our interactive map of North America lets you identify treatment centers geographically.
Foundations and Associations
Iron Disorders Institute (not specific to bone marrow failure diseases)
Iron Overload Diseases Association (not specific to bone marrow failure diseases)
Patient Resources and Support Groups
Fisher House (for military families)
Iron Overload Support Network (AA&MDSIF)
Talk Blood Cancer (Australia)
Bone Marrow and Stem Cell Transplantation
Blood & Marrow Transplant Information Network (BMTInfoNet)
Medical Information and Clinical Trials
ClinicalTrials.gov (a service of the U.S. National Institutes of Health)
Patient Financial Aid and Advocacy
Medication Assistance
Novartis - Exjade/EPASS Reimbursement System (application PDF)
Medical Flight Programs
Professional Organizations
Canadian Treatment Centers by Province (map)
Below are three major Canadian treatment centers for AA, MDS, and/or PNH, all in the Toronto area. All are designated as Centers of Excellenece by The MDS Foundation. (See Designations and Registries below.)
See also our Treatment Center Map.
U.S. Treatment Centers by State (map)
Factors to consider when choosing a treatment center include the center's experience with your disease, your insurance coverage (you may be required to go to a particular center or get a referral from your primary care physician), your doctor's recommendations, and the center's location, staff, and facilities.
Below are major U.S. treatment centers for AA, MDS, PNH, and/or cancer in general. Some are designated as Comprehensive Cancer Centers by the National Cancer Insitute and/or Centers of Excellence by The MDS Foundation (see Designations and Registries below).
See also our Treatment Center Map.
California:
Colorado:
Florida:
All Children's Hospital (Pediatric)
Illinois:
Indiana:
Maryland:
Massachusetts:
Michigan:
Nebraska:
New Jersey:
New Mexico:
New York:
North Carolina:
Ohio:
Pennsylvania:
Tennessee:
St. Jude Children's Research Hospital (Pediatric)
Texas:
Washington (state):
Children's Hospital & Regional Medical Center (Pediatric)
Seattle Cancer Care Alliance (an alliance of the Fred Hutchinson Cancer Research Center, UW Medicine of the University of Washington, and Children's Hospital & Regional Medical Center)